Friday, June 29, 2012

Today's a bit better than yesterday....

To kick things off, here's a video of Alex in front of the fan display at the store -- his expression is priceless:





Water balloons


Running through the sprinkler


Painting on the sidewalk

Sandbox

Playing with brother
As you can see, Alex has been very busy the past few days. It has been hot, hot, hot here, so he has been introduced to a lot of water play. He got into his first water balloon fight (thanks, Deb, for bringing those over!)—actually, five minutes’ worth of kids throwing water balloons on the ground to see them pop, but whatever. He “ran” through the sprinkler with me and the other kids. We made a water table for him to play in on the deck outside, and he spent more than an hour using a ladle to fling water across the deck. Our jealous two-year-old played alongside him, alternately helping him out and attempting to douse him with water. Yesterday he played in the sandbox again, with the hose dripping water from overhead. And he painted our front sidewalk (again with our two-year-old) using sidewalk paint made from corn starch and food coloring (thanks, Marcy!). He has been introduced to the joys of beating on pots and pans by his sister and brother. And, as always, he enjoys just hanging out on the couch flipping through his phone book.

We have seen some big changes in the week since we have been home. We’ve seen fewer tantrums and less crying overall, and less negative behavior in general. He seems to feel safe enough to relax. On several occasions he has complied with our directions (“Quieter!” “Gently!” “Give it to me,” etc.)—spoken in Russian. He is learning a few English words; our toddler has been happy to teach him “No!” Susan thinks he asked, “What is that?” in English yesterday—possibly mimicking our toddler. I think he may be learning to say “more” in English, but it’s hard to tell.

All of this is huge. Although we expect ups and downs in our adjustment to life together, overall things will only get better from here. We’re told by other adoptive families to expect 6-8 months to our “new normal.” It is going to be a long haul for all of us, but we’re off to a good start.

The paperwork blizzard continues…he needs to sign up for social security and medical insurance and on and on…and he has lots and lots of doctor appointments coming up, too. We are going to spend our summer at the doctor’s, I think. We’re learning more about his CP; without going into too much detail, it seems he might be able to walk—might—with some significant intervention. Obviously time will tell.

Our toddler is having a hard time adjusting. We left a very sweet, easy-to-handle two-year-old in May and came back to a little terror who cries at the drop of a hat and can’t figure out whether he wants to off this new kid or take care of him like he sees mom and dad do. It complicates things, for sure. The older kids have been hugely helpful.

We have also been getting tons of help and support from family and friends, nearby and far away. We have one friend who is actually staying with us for a couple days so we can do things like complete more paperwork and, um, unpack (yeah, we’re not even unpacked yet). Our days are kind of wall-to-wall busy, and we are trying to be good about getting enough sleep, so please forgive us if your kind note, gift, or meal hasn’t been acknowledged yet. All of your support has been helpful; your words of encouragement in particular have helped us pull through.

As for myself (Jerry), I am doing better than at the beginning of the week, for sure. I am now on a couple drugs to help with sleep and anxiety, and I have two decent nights’ worth of sleep under my belt. I think I was more exhausted from this trip than I knew, and more stressed out about the enormity of what we have taken on than I wanted to admit. As I get more sleep and rest, and as Alex demonstrates his resiliency and some trust in us, I think things will keep getting better. Not that they won’t still be hard—I dread the two or three weeks at the end of the summer when I will be home with all the kids by myself before school starts—but I think it will be a manageable hard, which isn’t a bad thing. No one ever was promised an easy life, and life is much, much harder for most people around the world.

Which reminds me…please pray for our fellow adoptive parent Lora, who just adopted a child (“Francine,” one of nine we had considered initially) a few months ago right before her husband was deployed to Afghanistan. Now her family has been evacuated from her home in Colorado Springs; the last we heard, she expected it to burn. She could use a break or two here.

Wednesday, June 27, 2012

Guess who stayed up late tonight...?


Don't let this picture of Alex asleep in a baby sling (taken in Kiev) fool you...the little stinker was up way past his bedtime tonight, restless and crying a little. So all you get for Alex news today is this picture and the fact that he did very well at his long appointment in La Crosse to have his cerebral palsy evaluated.

Also, he ran through a sprinkler for the first time.

And today was a better day for the parents than the past five have been -- which is why I am now going to bed, on doctor's orders to get more sleep, and you'll have to wait until later to see pics of Alex in a water fight. : )

Now that we're surfacing....

Susan, this time. Last night was the first night we both had real sleep since we got back.  It's amazing how much better you can function with sleep...or think, even.  Neighbors remarked yesterday that Jerry looked like he'd been hit with a mack truck.  I was on the phone getting one of Alex's many appointments set up and forgot my home address.  We've lived here what, 8 years?  Yep.  Today we're looking better and thinking better too.

On behalf of both of us, I just want to give public thanks to a number of family members who really made this possible while we were gone from the USA.  Couldn't really let the kids loose to fend for themselves in the streets, eh?  And taking them with us wasn't possible on a number of levels (given what we went through and where we lived, I'm really glad we couldn't even consider it).  So my mother came from Alabama without a banjo on her knee (heh) and stayed for a longer time than we expected--a full month.  We had anticipated that Jerry would go home after court and that we would have court within 2 weeks--and that didn't happen; for reasons unavoidable on our end, it took a while to get court papers rolling.  Then when we got there, we realized that Alex's needs were profound enough that I really couldn't imagine taking him home on three flights by myself.  So Jerry stayed, and that means my poor mom was watching the other four kids for a month!  The kids really thrived, she did a number of things to the house to "get ready" for Alex, and we are grateful that the kids were in good care.  This also meant my poor Dad was by his lonesome in Alabama for a month (well, John and Amy--my brother and sister in law--and their kids live nearby in AL, but still)...so all of them really sacrificed to make this possible.

Jerry's mom and brother Andy came down to visit a couple of times (to give my mom a break, also, they like our kids!), and Jerry's brother Mark and wife Meagan and their kids picked us up at the airport and let us completely crash at their house after some 24 hrs of traveling on no sleep.  Becky and Mary (Jerry's sisters) have been super-supportive throughout this whole process.  My brother Mark and his wife Jesse and two sons in Virginia have been cheering us on too.  We are very blessed in our family.

Alex says Thank you!
Just wanted to put that out there!  Now my 10 minutes of downtime is over for the day. 


Tuesday, June 26, 2012

A new experience every day

Trying out a big kid's swing.
Alex is really enjoying his first few days at home, aside from the occasional frustration of not being understood. I continue to be completely exhausted from the intensity of our first few days, and in fact today went into urgent care, where I was prescribed an anti-anxiety med; I have a followup with another doctor tomorrow for further evaluation. No, I don't have a history of anything like this, and I don't know where this is coming from, except that maybe the stress of this trip and the adjustment have been more than I expected. We have a friend coming to stay with us for a few days beginning Thursday so we can get our feet under us (we haven't even had time to unpack), and we continue to receive very generous support from many, many people. Thanks to all of you who have brought meals via our mealtrain.com signup sheet...they have been extremely appreciated, and we hope to get personal thank you notes to you sometime down the road.

Alex has a new experience almost every day home. Today it was playing in a sandbox and getting D-I-R-T-Y, good and DIRTY, like any normal five-year-old kid! He played in there for about an hour. I also took him on a quick trip to Fleet Farm, where he was thrilled and surprised by the oscillating fan display. He takes delight in the simple things -- eating a peach or hot dog really gets him going!

He had his first pediatrics appointment on Monday, weighing in at 25 pounds. Tomorrow he goes to Gundersen Lutheran for a comprehensive motor mobility and neurological development assessment. He will be seeing lots of doctors all morning, and getting his first OT and PT referrals. More new stuff to come!

Alex loves reading the phone book before breakfast...no joke, he does.

Getting DIRTY in the sandbox.

Toward the end of the hour in the sandbox...including an attempt at eating the sand.

"Yeah, so while you're changing my diaper...ya got a flat screen TV around here? ESPN, maybe?"

In front of the fan display.

Can't really swing too much....

A fun bath at the end of a busy day.

Baby Dominic

Those of you who have followed this blog closely may remember that at the same time that we have been preparing to receive Alex, my sister and her family have been preparing to receive their newest family member, too...a baby named Dominic. Baby Dominic was diagnosed in utero with severe cleft palette that basically split his face in two; he had no nose, was missing his left eye (so they said), and worse, part of his brain was supposed to be missing and part of it protruding from his skull.

Baby Dominic came into the world the same day that Alex was given over to our care -- both of them kicking and screaming! So Dominic has a special place in our heart as a sort of soul brother to Alex. Like Alex, he is a survivor and a fighter. Not only was he not missing his left eye, not only was he breathing on his own, but he ended up doing much, much better than anyone predicted. My sister wrote a beautiful post updating us about Dominic's condition, and the beautiful way in which he has been welcomed into the world. Here it is:

I have finally found time to update; my week has been happily filled with feeding, pumping, and doctors visits, over and over again.  I say happily, because I in no way had ever envisioned myself doing these things with Dominic, I had fully expected to have my baby and hand him off to the doctors and nurses and that would be it, my role would be over. 
As so many of you know Dominic came out screaming and kicking and we were overjoyed, having been prepped for a silent baby that needed intubation to be able to breathe.  When Mark heard him crying on the other side he started sobbing tears of joy and relief which made me cry too.  He then brought him to me to be baptized (another gift, since I had fully expected the baptism to take place in the other room).  Mark kept on saying, "Honey, it's really good, he's doing so well!"  There was joy and relief! 
Since his birth we have had to completely change gears from what we had thought or had been prepared for.  Since his birth they have told us, "he is a healthy, robust little guy", words I never dreamed I would hear about my son.  We have been told his apgar was 9.9.  He did not need any tubes except the iv which was taken out soon afterwards. We were told by the geneticist that his case is sporadic, having nothing to do with my age or our gene pool.  We were told, even with the corpus callosum missing, they expect normal intelligence.  Again, we  had expected severly disabled to not making it, remember that?  I have had every doctor come in to say they are thrilled and amazed at how he is doing and last of all, to the amazement of everyone, he is feeding from a bottle, and very well I might add!  They are calling him a "rock star" around here. The doctors come in and say, "Well, would you look at that!".
  As much as I wish I was home (and I desperately do, I miss my children so much!),  the time here has been a real gift.  I have spent all of my time with my new son, getting to know him and enjoying every. single. second.  I love watching him hold on to the bottle with his strong hands, he loves being in control!  I love it when he is awake and listening to me talking to him, he is so far, a very peaceful baby.  I love hearing his husky little voice that sounds just like his brother Augustine's. I love looking over every single inch of him right down to his cute swirl of hair on the top of his forehead.  Speaking of the doctors and nurses, I have to say they have been absolutely wonderful!  The nurses have been so sweet about him and positive.  They have allowed me to enjoy all of his sweetness, and all they do is focus on that.  Sometimes they will come in and say they just need a snuggle, they truly have made the first week with my son, filled with wonderful memories.
A part of me wishes I could stay here where it is safe and secure with people who understand and he won't be hurt by the world.  I know that we have been blessed with such a wonderful support of friends that will also embrace and love him, I thank God for that!  I am trying to figure out how we will deal with the rest of the world, who will not understand and may say and do things that are hurtful.  I am going to have to rely on God for this strength, as I know I do not have it in me.  If anyone says anything, I absolutely will crumble, please pray that I may somehow get a thicker skin or some kind of way to cope with this. This is what I wish I could tell the world, and I would put it on a big sign and carry it around with him if I could:
This child is fiercely loved; please respect him.
This child has not made me sad, in fact, he has brought more joy than I could ever imagine.
This child is a true gift, not less of a gift in any way because of his health problems, he is an absolute gift.
I am not burdened by this child, in fact he lifts me up to a higher place than I ever imagined. 
Do not feel pity for him or our family, you have no idea what he brings to our lives.
I am not sad about my child, I am so grateful God saw me fit to be his mother, I am honored.
I love this child so much...
Again, thank you so much for the prayers, I do believe there are miracles happening every day with Dominic.  If all goes well, and it seems to be, I will get to bring him home on Thursday.  If you could, please pray for the rest of the children, they are struggling a bit as this goes on without Mom home.  I cannot wait to get home to them!  And thank you to everyone for all that you have done for us, as Dominic feeds I tell him about all of you and all of the love he has been shown. As I hold Dominc, I love watching him dream and do his practice laughing and smiling.  Please join me in praying that all of the little dreams he is having may come true :) 

Monday, June 25, 2012

Home: A rough re-entry, but getting by with some help from our friends


I know we are way overdue posting pictures and news from Gotcha Day and our homecoming…sorry about that! Our re-entry has been much, much tougher than we expected. I want to briefly share about that, in the interest of not sugar-coating this kind of adoption as all sweetness and light, and in the interest of giving our Winona friends a heads up on what’s going on. There’s a dark side and a light side to this—I’ll give you the “bad news” first, and then the “good news,” and throw in some pics as a teaser for a more detailed post about Alex’s journey home sometime down the road.

The short version is that while we are enjoying having Alex at home, and enjoying being reunited with our other kids, we are also physically and emotionally exhausted from our thirty days in country plus a really grueling trip home. Also, we’re realizing the enormity of what we’ve taken on—not that we went into this process naive about the difficulties of adopting a child out of an institution, but reality is always so much more specific and vivid than any intellectual understanding you might have, right? And the reality is that our new son has a lot of needs—way more than our other kids, who are “needy” enough on their own.

Add on top of that the fact that Alex is especially needy at the moment. He’s been removed from the only home he has known for most of his life and is now living with virtual strangers who can’t understand (most of) what he is saying. He is off his very strict routine—every day is different, and full of brand-new experiences, so how is he supposed to know what to expect next? He isn’t sure he can trust us; he isn’t sure that he is safe. And he has gone from lying in a crib 20+ hours per day to being active for most of the day. No wonder he occasionally breaks down sobbing! So parenting him is more intense now, because we’re trying to show him that he can trust us—even when he gets really mad at us and acts out in ways that can be scary.

Then there is our two-year-old, who is displaying all the behavior you’d expect from the “baby” of the family who is fighting to not be displaced by the new kid.

Combine the exhaustion with the intensity of this adjustment and what do you get? Well, let’s say it has felt like jumping out of an airplane and waiting for the chute to open—extremely stressful. Both of us are stressed, but I for one (Jerry) have really hit the wall in a big way. I haven’t been this miserable in decades.

That’s the dark side, the bad news, and frankly, we’re not the only ones. I talked to the outreach nurse at the International Adoption Clinic at the University of Minnesota today and she said that our experience is not at all uncommon; it’s got to be higher for families adopting special needs kids.

The good news is that the vast majority of families work through the dark times to a new normal that is not only functional, but joyful. And the good news is that we’ve got lots of help getting there.

Throughout this journey, we’ve enjoyed the support of family, friends, and community members. When things started looking really grim around here, we got online with our post-adoption group and one of the wisest things anyone said was to beg—not ask, but beg—for help. Duh, why didn’t I think of that before? So I started begging. I called some friends and asked them to come over to talk and pray, and they did. I called another friend and asked her to put out the word that we could use meals for a few more weeks, and she did. And she offered words of support, and a cool backpack carrier to use with Alex. I called another friend this morning and asked for help shopping for clothes for Alex (we didn’t know before we got him that he’d be in size 2T at age five). We said we’d pay for them, of course. A few hours later, she shows up with clothes that fit—including overalls, so his pants don’t fall off as he’s crawling—and refuses to be paid back. Plus she brought us a used jogging stroller!

Another friend has generously offered to spend as much time over here as her schedule will allow. She spent almost the whole day here today, allowing us to get Alex to his appointments and helping with the kids and picking up medicine (melatonin to help me sleep). And a dear priest friend stopped by to visit this evening as well, and to pray with us.

And that doesn’t count all the professional help we’re lining up. We’re slated to visit the wonderful International Adoption Clinic sometime in the next couple weeks, and our local health care provider is referring us to the comprehensive neurological development center in La Crosse, where we will get referrals to specialists who will be able to help with the broad spectrum of Alex’s various challenges. And we saw our family therapist today, too, who offered good insights and advice.

With so much help, we’re confident of getting over this difficult hump and through to a “new normal,” even if it takes months to get there.

The good news is also that Alex is surrounded by love, all day long, and is clearly, clearly basking in it. And that is a victory.

Comments are turned off for this post; there are folks out there who will point to our experience as an example of why international adoptions are evil. I just have to disagree; they are hard, but worth it, even given that a few end badly. I appreciate other perspectives but don’t have the energy to engage in that debate now.

Here's a pic of Alex playing catch with our priest friend:


Wednesday, June 20, 2012

Gotcha Day Times Two

Monday was Gotcha Day! We are sweating like crazy in our hot, humid apartment, and have our hands full with Alex, so just a few pictures....a more detailed account when we get home:


Saying goodbye to a nanny

Susan and Alex with our facilitator, Luda, and the orphanage director, Tatiana,
and the orphanage doctor.


A tearful goodbye with an orphanage nanny outside the gates

In the car on the way to Kiev. Susan and I switched spots halfway through.

In our Kiev apartment

It was also "Gotcha Day" for our new nephew, Dominic, whose survival was questioned due to birth defects...baby is doing much better than the doctors thought he would, and mom is having a tough recovery but otherwise doing well...their family, like ours, has received absolutely amazing support from their community.





Hooray for friends, families, and good people coming together to do something beautiful for these children!

Sunday, June 17, 2012

Tomorrow's Gotcha Day, Times Two

Yum! Nothing tastes better than a contraband cookie!
Tomorrow is Alex’s “Gotcha Day.” We will visit him as usual (but a little bit later, and more briefly) in the morning, and then he will go to have one last lunch with his groupa while we sign more paperwork and distribute small thank-you gifts to the nannies who took care of him for us. We’re also bringing treats for his groupa—candy bars, cookies, juice, bananas. All of these are pretty rare, and help the kids to celebrate along with Alex.

After his lunch, we will hit the road for Kiev, the capital…a four-hour drive. We’ll set up in an apartment there, and complete documents for the U.S. Embassy over the next two days. Then, if there is no snag getting Alex’s visa, we will wake up at 3 a.m. Thursday morning to fly out of Kiev, with stops in Munich and Chicago, where we will go through customs and immigration. We’ll arrive in Minneapolis at 7:35 (assuming all goes smoothly!) and crash at my brother’s house, having been awake for 24 hours. Then he will drive us down to Winona the next morning.

It is going to be quite an exciting week.

It will be doubly exciting because tomorrow morning, at around 8 a.m., my sister will have a c-section to give birth to Dominic. Little Dominic has severe birth defects—basically a face that is split in two, with likely brain damage—and whether he will survive is apparently a bit of an open question. If he does survive, he and his family will be facing some real struggles. They’re confident that there will be joy woven into those struggles, and so are we. We’re excited to meet little Dominic later this summer.

So in a way, we can call tomorrow Gotcha Day Times Two!

Just a note that we may not be posting anything new until the end of this week; with Alex in tow, it will be a lot more difficult to find time for being online. We'll post as we can, though!



"Why do you want to adopt a special needs child?"

“Why do you want to adopt a special needs child?” It was the morning of our court hearing—in fact, we were going to be leaving for the courthouse in half an hour—and our facilitator was preparing us for some of the questions we would probably be asked. This question, she explained, was guaranteeed to come up.

“Well,” Susan began, a little unsure of how to proceed. She offered a short, stock response: We found out about these children, we felt we had room in our family for another child, we saw how well adoption had worked out for other families….

“You’re not answering the question,” our facilitator said bluntly. “That could apply to any child. Why do you want to come all the way to the Ukraine, go through all this long process, to adopt a child with special needs—when there are children in your own country you could adopt? Or children here who are healthy?”

Well, that does get to the heart of the matter, doesn’t it? This question came up a few times at home—but usually along the lines of, “Why go all the way overseas to adopt? There are plenty of special needs children here.”

Here, the emphasis seems to be more on the “special needs” part of the question. As we’ve mentioned before, the situation in Eastern Europe for people with disabilities is very similar to what it was in the United States a few decades ago. Social norms, cultural biases, ignorance, and the near-absence of any civic infrastructure to accommodate people with disabilities all contribute to the problem.

A couple of incidents have deepened our understanding of why that question carries such importance here. As we briefly mentioned in another post, one of the advocates for the child in our court hearing really kept pressing us on how we could possibly take care of a child who was so severely handicapped and who would need “constant attention from a parent.” As we have heard from many other parents who have gone through these hearings, many people here genuinely can’t imagine any possibility for these children other than institutionalization. How could you possibly care for a child with special needs by yourself? At home?

When others in the room asked this woman why she was asking so many questions, she shot back, “Because I know from experience what it means to take care of a special needs child.” It turns out that she has two children at home, one with cerebral palsy, the other with club feet. Her husband left her after the birth of the second child. Imagine that your children are born with significant disabilities; imagine that you buck convention, ignore the doctors’ advice, and decide to raise them at home—even after your husband walks out on you. They cannot go to school. They receive no social services or help from the government. Getting out is a major challenge when the physical infrastructure of your town is virtually devoid of ramps, elevators, or other accommodations—and when some people will look at your children askance, or worse. What if they need special medical care? An operation? Besides having to find the money for this yourself, you have to go to the hospital with them, and stay with them the entire time, because no one will feed them for you. You have to stay with them all day, every day, without even a cot to lie down on.

What a brave woman. And no wonder so few people are willing to take on that challenge.

During our visit with Alex yesterday, we saw a woman visiting one of the other children in his group. From her demeanor and familiarity with the child, I’d have to assume she was his mother. She seemed genuinely happy to be visiting him. One of the reasons that many of these children are not available for adoption is because families have no other option but to house their children in an institution, but they do not want to cut ties with them.

Given that there are some 120 children in this orphanage, it is a little surprising that she is the only visitor we’ve seen in more than two weeks. On the other hand, quite a few people here work seven days a week. As one person told us, “We’re too poor; we can’t afford to worry too much about such things.”

Under the circumstances, it is no wonder that so many people (including a few judges and orphanage workers) seriously believe that foreigners adopt special needs children in order to harvest body parts, or for their own financial gain. (This was another question we were prepared to possibly be asked in court.)

“Why do you want to adopt a special needs child?”

We looked at each other, then back at our facilitator. “Do you really want to know the truth?” we asked. Yes, yes, she said—tell what is in your hearts.

The truth is that if people from more affluent countries don’t adopt these children, it is extremely unlikely that anyone will. The truth is that if these children are not adopted, there is a high likelihood that they will spend the rest of their (usually short) lives bored senseless, in the most literal sense, confined to a bed in a barren institution where their needs will be met only on the most basic level. The truth is, they may never know what it means to be loved.

The truth is, we are Christians, and God help us, there is no way we would be doing this if it weren’t for our faith. We know the love of God, and the love of family, friends, and neighbors, and we believe that we are called to “pass it on”—not just for the sake of others, such as these children, but because we believe that letting love flow through us—opening ourselves to God’s love, and passing it on to others—makes us more fully alive, and more fully who we were meant to be.

The truth is, we are opposed to abortion (and all forms of violence), and we take seriously the implications of our belief in the dignity of every human being. If we believe that these children should not be thrown away before their birth, then we bear some of the responsibility for taking care of them after their birth. Yes, we do.

And the other truth is, we have fallen in love with this little boy. We began this process because we heard God whispering to us, “Take this risk…take this chance…and watch how wonderful it will be. You can’t imagine all of the good things adopting this child will bring.”

Okay. Why not? Every time we follow the invitation of that teasing little voice—that challenge to stretch ourselves, to give a little more—wonderful things happen.

We would never want to discount the real hardship and sacrifice that accompanies loving any child, and especially children with severe special needs. Not everyone is able to do it, not everyone is called to it, perhaps sometimes not even the biological parents. That’s okay. We do what we can, right? But if the question is why we in particular want to embark on this journey, then the answer is simple: It’s good to love someone, and it is especially good to love someone who is especially in need of that love.

(Susan, by the way, wants it to be noted that we were not quite so poetic in court, where our answer was significantly shorter and more practical: We’re practicing Catholics, and our faith calls us to help others, and the children here need help that we are uniquely qualified to offer. Now that would have been a much shorter post, wouldn’t it?)


Friday, June 15, 2012

If you want to help...

Check below for the latest exciting post on Alex...but in the meantime, we've had a few people ask what they can do to help out. The short answer is that we're basically fine, although your prayers and words of support are appreciated more than you probably realize. For those of you who want to do something more concretely....
  • We're looking for a used jogging stroller, the type with three big wheels that folds up and reclines. This will be Alex's ground transportation until we make other arrangements with his OT. We will purchase this...just let Susan's mom know if you find one (452-5399).
  • If you have a bumbo sitting chair (used for infants/young toddlers to help them sit up), we'd love to borrow it for a while.  If you are thinking wait, he's 5 yrs old!-- he is really small and thin, I think it would work for him...sadly. 
  • If you have some developmental toys for infants/young toddlers, like stacking rings, or simple wood puzzles, we MAY want it...check in with us when we get home, OK?
  • We're looking for 3T clothes, used; if you have extras that you're getting rid of, we might take it.
  • You can sign up to bring us a meal on MealTrain.org.
  • I suspect that we are going to want to make the house more accessible from the garage by adding some ramps and improving the sidewalk...if you can pitch in on this major project, let me know.
  • You can spread the word about the many kids with special needs who need a family in order to avoid a short, boring life in an institution. 
  • You can also ask us about how to help the orphanage that Alex has been living in. Wouldn't it be great if we could buy them seven more windows???

Balloons, spit, tickets, and a James Bond moment

On the rocking horse

Looking at the book

Playing with a balloon; Alex's teenage friends looking at his book.

Us with the director


A shorter post today, due to the late hour. We had an action-packed day…here are the highlights:
  • The director sought us out to have her picture taken with the three of us, a task carried out with much amused laughter on her part, due to the language barrier and Alex’s total lack of interest in looking at the camera, despite a nanny’s valiant attempts to lure his eyes by acting silly and singing, “Cuckoo!” We finally did get the pictures and a promise to see her again on Monday before we leave.
  • We were joined by a gaggle of four teens at one point during our visit. They gathered around to watch Alex play with a balloon; we would blow it up, then release it and watch it fly all over the place, to the general amusement of everyone. The teens tried to communicate with us as best they could, and in fact asked for their own balloons, which we gave them (uninflated). They also pored over the family picture book that we brought for Alex, which he still prefers to flip through over several other picture books. They are a great group of kids; hopefully they will all find permanent homes.
  • We saw more babyish acting out behavior from Alex today, including more spitting. As we carry him through the halls, he likes to shout to hear the echo, and he likes to spit on the floor—not on people, but just on the floor. Spit, ha ha ha ha ha! Spit, ha ha ha ha ha! So it goes. We tell him “no” and “don’t do that” in Russian, which has no effect since it is not backed up with any consequence greater than me stopping our progress down the stairs or through the hall, turning him toward the wall, and ignoring him while he spits to his heart’s content. If the floors weren’t verboten around here, I’d put him down, too, and step away for a few seconds, until the behavior stopped, but that will have to wait until we are home. Anyway, for now, we just stop everything and quietly wait until he is sick of spitting, and after a few seconds more, resume our progress. This is a very slow way to get outside. We will see whether this has any effect over the next few days.
  • We bought tickets! Barring a snag in the process of acquiring Alex’s passport and visa, which we are told is unlikely, we will touch down in Chicago at 3 p.m. Thursday afternoon, and in Minneapolis at 7:35 p.m. that evening. Right now we’re leaning toward staying overnight in Minneapolis, considering that we will have been awake for 24 hours straight by that point. We purchased travel clothes for Alex today (no, he doesn’t get to take his orphanage wardrobe with him!) as well as a sturdy umbrella stroller for the airport.
  • And probably the most exciting few seconds of the day came when our taxi driver decided to take his hands off the wheel, lean across me, and open the passenger door, then slam it shut, while we were moving down a busy, unstriped road. Recall, dear reader, that they laugh at seatbelts here. Then he arched his back over the seat to reach Susan’s passenger door to do the same thing—again, no hands, ma! Well, one hand held a cell phone. And people wonder why you’re 100 times more likely to die in a car here than in the U.S. Well, as I casually quipped to Susan immediately after, “It’s an adventure around every corner here, isn’t it?”
Did I mention that we’re coming home in six days? And counting? With a sweet, sweet little boy who we could hear crying and crying and crying all the way down the hall as we left? Two more days ‘til gotcha day, kiddo…hang in there!

Me with Volodni, our regular driver, who has a working seat belt and does not
open the doors in transit. He is also locally famous--everyone seems to know him.


Thursday, June 14, 2012

What about the other 119 children?

No Alex pictures in today’s post, although at the bottom of this post I will provide a quick bit of news of interest to our close friends and family. Today, though, I’d like to share about the other 119 children at this institution, because one of the (many) things we have been praying for on this trip is an opportunity to help the other children here who deserve homes and families just as much as Alex does. Most of our time here has been somewhat frustrating in that way; it hasn’t been obvious how we might help these other children. But as we have continued to pray about it over the past week or so, I think we’ve slowly realized what our larger purpose here might be. And yesterday, during a conversation with the director of the institution, I had an “aha!” moment—as if the veil had been lifted a little, giving us perhaps a little peek at the bigger scheme of things.

Let me begin by just describing what we’ve seen at this institution during the past two and a half weeks. Orphanages for the mentally and physically disabled in Eastern Europe have a bad reputation, and with good reason. Some of them are living nightmares in which children are left lying in cribs, unattended, for most of the day—sometimes sitting in their soiled diapers for hours, and certainly not getting the attention or stimulation necessary to develop. This is not really disputed; you can easily find reports and videos online documenting such institutions. In the month before we left, a neighboring country fired the staff of a particularly egregious institution, thanks in part to the work of an American family who had adopted a child from there. Even at the better orphanages, disabled children usually do not receive any formal schooling. There is a pervasive attitude here that children with physical or mental disabilities are “defective” and lack the potential for human development. The attitude is really not too dissimilar from what was common in the United States up until the 1970s or so.

But it’s important to fall too easily into stereotyping: not all of these institutions are like the worst of them, nor do all of the people working in them share the same views. There is clear evidence of improved attitudes and practices in some of these orphanages—little spots of hope here and there. The institution where Alex lives (and as far as I can tell, it has no formal name beyond the name of the town where it is located) can clearly be ranked among the better orphanages for older children. Ten years ago, it lacked running water and electricity in some of the wings, and there were no trees on the grounds. I don’t know about the morale or attitude of the staff, but I would guess that it reflected the physical conditions to some extent.

What have we seen in the past two and a half weeks here? The grounds of the orphanage are a veritable Garden of Eden, full of roses and daisies of various colors, and probably close to an acre of vegetable gardens. The grounds are full of trees. I have not done an exhaustive survey, but I suspect that every one of those trees is a fruit tree of some kind; we have certainly seen apple and cherry trees. Besides the gardens, there are three outdoor play/relaxation areas where the kids can be outdoors and get some much-needed Vitamin D from the sunshine. This includes some swings and slides installed by a missionary organization.

Inside, the hallways are frequently (but not always) dark. They simply don’t waste energy on lighting the halls. The walls of the downstairs hallway are covered in pictures of field trips the kids have taken, as well as visits from missionary and other charitable groups. Crafts and artwork are also proudly displayed, including some fairly elaborate cross-stitch. Large tapestries of icons of various saints—typically Saint Nicolas, patron saint of children, and Mary, the archetypical mother—hang everywhere, including over the director’s desk. The downstairs is given over mainly to offices and utility rooms, while the upstairs includes the play and exercise rooms, as well as the dormitories for the children.

We have not had a lot of close contact with the other children; we have been encouraged to focus our time on bonding with Alex, which is entirely appropriate. Nevertheless, as we play with him outside or move through the building, we are frequently approached by the other children. Many of them will smile their biggest, best, most beautiful smile at us, reaching out their hands for a touch or a hug. Some of them will practically tackle us for a hug, which can be surprising if we’re in a darkened hallway. After we recover from the shock, we say “Hello!” (in Russian) and briefly hug them before their nannies sternly call them back.

We walk into the exercise room at 10 a.m. every morning to pick up Alex, and are greeted by ten pairs of little eyes trying to engage us, some reaching out their hands toward us. Others just look and look, not stirring from where they have been placed. Each child is on an exercise machine—stationary bikes, a rocking horse, a device that helps them to stand up. (Simply standing is critical to maintaining good bone density.) There is a cot where the kids with cerebral palsy can do their stretches, one at a time. Alex is almost always in a baby swing that he can move by himself by grabbing the support bar with his hands. There are perhaps six children in the exercise room, and another two or three in the adjacent play room. The room is eerily quiet, for having that many children in it; we have not really observed them talking to one another or making much noise at all. Often there is a radio going, playing Russian pop music.

What would you do, faced with all those eyes? We try to touch each child as we pass by, if only briefly—clasping a hand, offering a smile and a greeting; we place our hands on their chest, or head, and they smile and smile. Some of the children look very similar to Alex—I sometimes initially mistake another kid for him when I first walk in. Others are more profoundly disabled, mentally or physically. A surprising number are very thin and gaunt, reminiscent of the starving kids you see on television programs. It is surprising in part because we know that these kids are pretty well fed; we see Alex fed his “second breakfast” every morning at 11, which is followed by a lunch at noon. But these are younger kids, many of them probably just transferred from other institutions; perhaps that has something to do with it. Or maybe they have underlying health conditions that cause their gaunt appearance.

Three days ago there was a little girl in the ball pit that Alex loves to play in. She was lying on her back among the colorful balls, holding a foam block and making soft noises as she turned it over and over. Her warm brown eyes and face were framed by dark brown hair, and her arms and legs were so, so thin—maybe an inch in diameter? As we played with Alex, we sang songs, in part for her to hear. Susan reached out a hand toward her hand, but she recoiled, which is not uncommon with children who are profoundly understimulated. She was still lying in the same position half an hour later when we left.

There are, as I mentioned, about eight to ten kids in Alex’s “groupa.” While they are in the exercise and play rooms, they have one nanny (Yana) who works with them, one at a time. She feeds them their kasha, or helps them exercise; she does Alex’s morning stretches. She is warm with the children, although not effusive, and very efficient. She has to be; she is outnumbered. She was our “minder” during the first week we visited Alex, watching our interactions with him and helping us out as needed. She showed us The Restaurant (the only place worthy of the name in town; like the orphanage, it appears to have no name) on our first full visit, and pulled out a Russian-English dictionary a few days later. She climbed a cherry tree to pick some cherries for our facilitator, and she has showed us some basic methods for helping Alex to stretch.  She knows her stuff about stretching muscles of kids with CP.

Today I visited Alex alone, because Susan was not feeling well. Toward the end of the visit, we went back to the exercise room, where Yana was still working with the kids. I couldn’t figure out why Alex would prefer to go back to that room, when normally he is eager to get out. It turns out they have some new toys—inflated rubber rocking horses that both rock and bounce (excellent exercise for strengthening the core torso muscles, if done properly). She showed me how to hold him on the horse and bounce him, and then she went to feed the other kids. While she was occupied, a very curious little boy who appeared to have no physical disability kept coming over, trying to separate me from Alex who, let me tell you, did not take kindly to the competition. He GLARED at the kid as he clambered over me, and when he tried to climb up on that rocking horse, Alex loudly protested and then whacked him a good one. And we were worried about him getting pushed around! I told Alex, “No, no, no, no, no!” (that’s about four no’s too many, for my fellow ECFE parents—but hey, I was under duress) and gently separated them, trying to engage the other one behind me while continuing to bounce Alex in front of me. It has been 90 degrees for several days, and that place is not air conditioned; I was sweating like a pig by the time I was done.

All the while this was happening, Yana was occupied with other kids. I assume she figured I had things in hand, but it just underlines that even here, it is impossible to provide the level of attention these kids need if you don’t have enough people on hand.

Some of the other children are older, in their teens, and clearly higher functioning or without any noticeable mental impairment. Again, they seem happy…but I cannot imagine what it must be like to spend day after day on the same routine, with no schooling or outside social contact, much less any hope of ever having a real family. One teen came over to watch us play with Alex for a while; he said he sometimes played with Alex. He seemed very friendly and engaged, and at one point pulled out a cell phone (possibly supplied by his family; not every child here is an orphan) and was looking through text messages. Another time, we were walking in the garden when we came across a fifteen-year-old girl in a wheelchair. We had seriously considered also adopting this girl, because she is just months away from being transferred to an adult mental institution, where she would almost certainly not be as free or well-treated as she is here. (Restrained or forced to stay in bed are real possibilities.)  When we came across her in the garden, she was picking roses with another girl; they were chatting amiably, laughing a little, but she clammed up when we showed up—shy, I guess. She has beautiful light brown hair that someone had done up in a fancy braid. Other times, when we are outside, she watches us very closely. She smiles and sings along, clapping with the music, when the accordion man comes to play for the kids every other day.

Fortunately, another family has committed to adopting her; their paperwork was officially submitted today, which means they should be here in a couple months, just a week or two shy of her transfer deadline. What a relief. Some of the older children who “age out” of this institution get to stay on longer because the director persuades the officials in charge of such things that they would be useful around the place, especially helping the younger kids. This girl would not have had that option because of her physical disability.

What would you do to help these kids, if you were here? Perhaps simply being present is a start—acknowledging their presence, smiling at them, touching them, showing them a little bit what a family looks like.

Yesterday we had our first extended conversation with the director of the orphanage. The occasion was the donation of the money that had accumulated in Alex’s government-sponsored trust fund, about $3,000, to the orphanage. They will buy seven new windows to keep out the winter cold; the current ones are drafty, and frost over. The director wanted us to see the receipt for the windows—she even invited us to come along to the factory to pay for them ourselves. She is clearly very concerned that there be no question of whether there is any corruption going on here.

In the course of the conversation, we began talking about our visits, and mentioning how warm and friendly the staff has been. The staff truly are very friendly, with us and with the children. “These children are loved,” she said, and we believe it. Obviously not every staff person is smiling every second, but I don’t know a single parent who would want to be held to that high standard. “This place is no replacement for a family, but these children are loved,” she said.

We offered condolences for the assistant director, a woman named Lena who has been especially warm, friendly, and outgoing wiith us; her only son was killed when he was struck by a drunk driver a couple days ago.

She told us about the training her staff receive from university professors in the United States and Holland who specialize in therapy for disabled children. And then she said something that ended up being my “Aha!” moment—my realization of what may be our most important role in helping the other 119 children here.

“You have been playing with Sasha out in the open, where all the staff has been able to see and hear you,” she said through our facilitator’s translation (we have been singing to Alex a lot). “And they have calmed down a lot about international adoption. They are glad that Sasha will be going to your family.”

Earlier in the afternoon, over lunch at The Restaurant, we had been talking with our facilitator about the possibility of listing more children from this orphanage for adoption, particularly the older ones in danger of aging out. She had counseled patience; this is the first adoption from this orphanage in many years, and the director and staff are understandably cautious, taking a wait-and-see attitude. What they see happen in this adoption, and in the adoption of the fifteen-year-old girl in August, will make a big difference in wheher other the other 119 children in this orphanage (or at least the ones whose families have severed ties) will have a shot at getting a family.

And so perhaps our “larger role” here is as simple as that: to show what is possible for these children, and to show that adoption can be a very positive experience for them. In court, someone testified that “all the staff have confirmed that these are good parents,” a comment that was repeated by the director in our meeting. That is half the battle. The other half will be following up. Far too many adoptive families never follow up with the orphanage, which is a shame, since part of the transformative power of international adoption is showing that these children have great potential, if given the proper attention and resources, and showing just how happy they can be in a family setting.

“Please, stay in contact with us,” the director told us. “We would like to know what happens to him.”

And so that will be our “mission” for the next fifteen years…documenting (we hope) the positive influence of a loving family in one child’s life, and in the process, perhaps helping to break down the institution doors in Eastern Europe for future children.

* * *

We received our appointment at the U.S. Embassy today—Tuesday morning at 9 a.m. It is looking increasingly likely that we will return Thursday, arriving in Minneapolis around 7:45 p.m.

If you were signed up for the Meal Train this week and got cancelled, we will open up the schedule for the week after our return. We don’t NEED meals, but we won’t refuse them, either, as we adjust to our expanded family!